Tuesday, January 20, 2009
Thanks to Renee for asking how Tuba is doing with his new VNS battery. Tuba's seizures are unfortunately not getting better. He is having about 10-15 a day now. We don't know why. He got the new battery and had a medication increase but it hasn't helped. We are hoping and praying they subside soon. We have seen this pattern over the years where the seizures go up and then go down and/or away and then up again. They are not as bad as past years and we hope to never go there again. When he was about 4 he was having 100 seizures a day. I will call and see if we can get into the neurologist soon and see what else they can offer. Keep praying for Tuba...and I'll keep you posted on his progress.